Favors, Facts, and Fishnets: Shaping Autism Law and Policy
Lorri Unumb
In 2004, the New York Times wrote that “no disability claims more parental time and energy than autism.” Families dealing with autism face many hardships, not the least of which is financial hardship. One reason for the financial hardship is the failure of the health insurance industry to cover treatments for, and sometimes even diagnosis of, autism. As recently as the turn of the millennium, it was widely accepted that health insurance did not cover even the standard treatments for autism. Since 2007, there has been a fast-moving national movement toward autism insurance reform. More than 40 states have now enacted legislation requiring insurers to cover autism interventions, including ABA. In this session, we examine the language of the autism insurance laws, including a comparison of their key terms and features. You will learn about the different types of public and private health insurance plans, with a particular emphasis on recent activity in Medicaid policies. The potential pitfalls that consumers may face when attempting to utilize benefits are discussed. Finally, effective strategies for influencing autism-related policy decisions are presented.
Presented at the 2016 Michigan Autism Conference
Lorri Unumb is a lawyer, professor, and the mother of three children – Ryan (15), who has classic autism; Christopher (12); and Jonathan (8), who has Asperger’s. In 2005, she wrote groundbreaking autism insurance legislation for South Carolina (“Ryan’s Law”) that served as the catalyst for the national autism insurance movement. Lorri began her autism advocacy as a volunteer. In 2008, she was recruited by Autism Speaks to work full-time and has since testified more than 100 times on health insurance issues around the country. For her advocacy efforts, Lorri has been recognized with many awards including:
- BACB’s Michael Hemingway Award
- California Association of Behavior Analysts “Leadership in Law” Award
- APBA “Jerry Shook” Award
- NASCAR Foundation’s Betty Jane France Humanitarian Award